Lifestyle and Exercise in Long QT Syndrome, “Live LQTS” is an exciting new study whose goal is to determine how lifestyle and exercise impact the well-being of individuals with LQTS. This study is funded by the National Institutes of Health.
Currently, it is recommended that many individuals with LQTS avoid most vigorous sports, based on possible links between vigorous competitive sports and sudden cardiac arrest for some people with LQT. However, the risks and benefits of mild, moderate, or vigorous exercise for LQTS patients remain unknown. LIVE-LQTS is looking to obtain information on how exercise and other lifestyle choices affect the well-being of people living with LQTS throughout the lifespan, from children to adults.
LIVE- LQTS is currently enrolling individuals, age 8 to 50 years old, both exercisers and non-exercisers. People with or without an ICD can participate. Participation involves a telephone interview and filling out questionnaires online or on the phone. Since all information is gathered by phone, fax, and/or internet, there are no geographic limitations to participation. It’s a three year study, with another brief questionnaire every six months. Participants also receive a Fitbit-type pedometer, to wear a few weeks per year, which is yours to keep. All information is kept strictly confidential. You can be participating in other studies and also participate in this one.
Whether you like to run, walk, play baseball, or sit and read a book, you can participate in this study and help us learn more about lifestyle choices and LQTS.